The Caregiver Experience of Medical Discrimination: You’re Not Alone, And You’re Not Powerless
Not long ago, we asked our community to share if they’d ever experienced inappropriate comments and interactions with medical providers. ...
Medicaid Myths and Misconceptions around Medically Complex Families
When it comes to Medicaid, we’re hearing a lot of talking points and not all of them are totally accurate… ...
Caregivers, Our Voices Matter!
…And it’s the most powerful tool we have! Caregivers of medically complex children know what it means to fight. We ...
Navigating the Caregiver Continuum: From Diagnosis to Advocacy
Mapping the Evolving Journey of Medically Complex Caregivers and the Road to Systemic Change Caregivers of children with medically complex ...
How Caregivers Cope When They Feel Like They Can Never Relax
Hey caregiver, do you ever feel like this? “As a caregiver, I feel like I’m constantly waiting for the other ...
What is the Caregiver Continuum? The Framework That Explains the Caregiver Experience
Editor’s Note:We’ve expanded on the concept of the Caregiver Continuum to provide a deeper understanding of the stages caregivers experience ...
Advocacy as Self-Care: How Redefining Self-Care Can Support Caregivers Mental Health
If you’ve been the parent and/or caregiver to a medically complex or disabled child for more than one or two ...
Here’s why we call ourselves “caregivers” (and why you might want to too!)
What (or Who) is a Caregiver? Let’s go with the most basic definition to start: a caregiver is anyone who ...
What does it mean to be Disability-Informed? (And why does that matter?)
NICU Mom: Why is he struggling to breathe and gulping for air like that? NICU Nurse: Oh, that is just ...