Articles By

Caffeinated Caregivers

This Is Not How It Should Be: Dr. Carolyn Foster’s Path to Redesigning Pediatric Home Care

The moment that changed everything wasn’t particularly loud. Dr. Carolyn Foster was a third-year medical student, doing rounds on the ...
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Ep 13: The Caregivers Are (Bleeping) Overwhelmed

We’re back with coffee, chaos, and maybe a few choice words, and diving straight into what feels like the collective ...
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Caregivers Are the Experts: Tovah Feehan’s Story of Listening, Learning, and Showing Up for Families

“Families have always been my greatest teachers, I carry what they’ve taught me into every setting I work in.” Tovah ...
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I Know Medicaid Keeps My Kid Alive and My Family Together, But I Don’t Always Know How to Explain It

What You Need to Know (and Say) About Medicaid Right Now If you’re raising a disabled or medically complex child, ...
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Hour by Hour: A Story of Grief and Growth

My caregiver origin story began with what felt like a random medical fluke. I had two healthy pregnancies, two smooth ...
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The Caregiver Experience of Medical Discrimination: You’re Not Alone, And You’re Not Powerless

Not long ago, we asked our community to share if they’d ever experienced inappropriate comments and interactions with medical providers. ...
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Medicaid Myths and Misconceptions around Medically Complex Families

When it comes to Medicaid, we’re hearing a lot of talking points and not all of them are totally accurate… ...
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Caregivers, Our Voices Matter!

…And it’s the most powerful tool we have! Caregivers of medically complex children know what it means to fight. We ...
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Ep 12: From Hospital to Home: What They Don’t Tell You (and what we’ve been doing the last six months!)

We’re back and ready to dive into the community complaint department! In this episode, we catch you up on our ...
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Between Breaths: A Caregiver’s Journey Through Grief, Love, and Resilience

I can still feel the summer of 2015 in my bones, when everything began to fall apart. The moment when ...
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